Frequently Asked Questions (FAQ)

What is the primary purpose of Primary Record?

Primary Records provides families with a centralized hub for electronically collecting, organizing, and sharing their medical information. This empowers them to carry their medical narrative seamlessly wherever they go, ensuring a comprehensive and accessible record of their healthcare journey.

How does Primary Record differ from other health apps?

Primary Record was designed to empower families with better control over organizing and sharing medical information, enabling them to search and connect to patient portals for easy collection of electronic medical data. Recognizing the challenges of new laws on electronic medical access and the complexities of medical coordination, the platform allows families to edit and enrich this information with personal notes and links, and to involve trusted Collaborators in maintaining and coordinating care.

Who founded Primary Record, and what inspired its creation?

Founded by two neighbors, the idea for Primary Record came from Jean Ross, who spent six years attempting to help coordinate care for families caring for their 80+ year-old family members. When Jean walked across her cul-de-sac to tap into Jim McIntosh's years of developing and leading software products, she found an equally passionate co-founder who was in the throes of supporting an aging mother and a daughter with Down Syndrome.

How can I download a health summary to share using Primary Record?

Primary Record's reports section features health summaries crafted by our clinical team, offering the most pertinent information for healthcare interactions using your data. Seeking input from families, we welcome suggestions for additional reports to enhance the sharing of comprehensive medical information tailored to their specific needs.

Is Primary Record free to use?

Primary Record allows someone to register and create one free medical profile to explore the application. A subscription is required for premium features and/or to add more Medical Profiles to manage.

How do I create an account on Primary Record?

Visit https://www.primaryrecord.app to register an account from a mobile phone or desktop.

Can I use Primary Record on multiple devices?

Yes, Primary Record can be used with a browser on a desktop or mobile phone. When using Primary Record on a mobile device, you can bring this to your home screen (just like an downloadable app) by selecting Add to Home Screen.

What kind of health information can I document using a Primary Record?

Today, Primary Record is helping individuals and families document an accurate list of Medications, Conditions, Visits, and Care Team contacts. The "Note" capability allows adding additional health information to add contextual notes about the health information or to add further detail as needed. Thinking of something that Primary Record could help you store? Click this link and let us know!

How secure is the health information stored in Primary Record?

Primary Record meets and exceeds the requirements set forth by the CARIN Alliance, a bipartisan, multi-sector collaborative working to advance the consumer-directed health information exchange, and the requirements set forth by the Federal Trade Commission’s Mobile Health App interactive tool.

Do I need a patient portal to use Primary Record?

A patient portal is just one way Primary Record helps collect medical information easily and securely. A patient portal is not required as information can be added manually.

Help, I don't see all the information on my patient portal!

Information sharing through patient portals is still in it's infancy.  Oftentimes, information found on the portals is not in a shareable format and is unable to be pulled over as a whole into Primary Record. When this happens, you may get fragmented or incomplete data. In those circumstances, we recommend using the information pulled as a foundation to tell your story. Use contextual notes and add details as you see fit to fill in any gaps as needed. You can also download and attach files to the elements in your Primary Record as you see fit. 

Is Primary Record suitable for managing chronic conditions?

Absolutely! Primary Record is designed specifically to better coordinate care and share medical information for those living with medically complex conditions. By keeping an accurate Primary Record, those managing a chronic condition can help fill in the gaps of medical information when visiting emergency rooms, hospitals, home care, nursing homes, and new doctors.

What premium features does Primary Record offer?

Primary Record’s premium subscription allows the ability to manage up to 6 profiles. When a subscription is paused, all Medical Profiles and organized medical information is still accessible. There's a lot of innovation happening at Primary Record, so stay tuned for upcoming premium features!

Is Primary Record HIPAA Compliant?

HIPAA, a federal law, establishes national standards safeguarding sensitive patient health information from unauthorized disclosure. It grants individuals rights to their health data, ensuring the right to access, verify accuracy, and know its viewers. This regulation applies to healthcare providers and insurance companies. These businesses are referred to as covered entities. The policy only applies to those businesses, not consumer applications like Primary Record.

Can I transfer my Primary Record subscription to someone else?

Please get in touch with **Support** if you wish to transfer your subscription to someone else.

What happens to my health information if I cancel my subscription?

Even if a subscription is canceled, continued access to your account, created Medical Profiles, shared profiles, and organized medical information remains available. 

Can I use Google or Apple accounts to register?

Yes!  Just click the Google or Apple sign on buttons accordingly.